Emmy’s Prayer For Sight : Emmalyn Kae Latchford : Raising Funds for Emmy's Stem Cell Treatment

               Friends, please pray for our little Emmy as she will be getting corrective eye surgery tomorrow @9am. She will be under anesthesia for roughly 90minutes! The surgery is being done on her left eye to straighten not only her eye but the turning of her head when she focuses. Thanks everyone for your continued support and prayer for Emmy.

              We still have around $6500 to raise to meet our goal for China and we have until the middle of May to get the rest. If you have anyone that you know that doesn't know about Emmy's Story please if you could please take the time to share it with them, It could be that one person that would get her the rest of the way to China. ♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥♥

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Emmalyn had her 2nd Opthamologist appointment on Tuesday the 9th of February. The appointmant was to examine and re-evaluate the condition of her Optic Nerve.
 

This new Ophthalmologist was very nice and sincere through out the whole appointment. She made us very feel very comfortable and at peace. She thought that little Emmy was so adorable and funny because she would not stop “talking” and was making silly sounds; Emmy was in a great mood!

 

The Opthamologist started Emmy's evaluation and was very pleased and excited on how well Emmy’s eyes are performing. She turned off the light in the exam room and used a small pen light to see how well Emmy would follow it. We were all very excited! She started following the little light and she thought it was funny :] The Opthamologist continued her evaluation and Emmy did a great job! She had her tough times, but the Opthamologist thought “for the sight that Emmy has she did great”. Then it came time for the exam part of the appointment and we started to get a little nervous.

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Emmalyn had her 6 month well baby check up on Tuesday, Jan. 19th. She is 17lbs 3oz. in the 75th percentile for her height and weight she is doing very well. 

Growth and hormone issues are something that is often associated with ONH,  So the fact that she is growing so well is a great sign and a very big blessing. We also scheduled her MRI, this will confirm whether she has just ONH or ONH and SOD (Septo optic dysplasia). Because she is only 6 months old and does not know how to "be still" they will have to sedate her, as a Mother I am very nervous about that part but I know she is in the Lords hands!

On the bright side her Pediatrician is very happy about how well she is progressing.  She is also very excited for us to take Emmy to China and see how well the stem cells work for her!

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But Emmy’s pain didn’t stop there. We started to notice that something seemed “different” when we would look into her beautiful dark blue eyes. She wouldn’t look back at us, and her eyes would wander or bounce, but we kept hoping for the best for our beautiful little blessing.

At Emmy's 3 month pediatric check-up that her doctor made a comment about her eyes and recommended she see a pediatric ophthalmologist.

It was at that appointment that we heard the most devastating words we have ever heard, “Your baby has Optic Nerve Hypoplasia (ONH), we can’t be sure what she sees or if she  can see anything at all, and there is no treatment”.

The doctor’s file went on to state:

10 week old showing no visual attention; severe, bilateral optic nerve hypoplasia--very likely to have lifelong, severe visual handicap

How do you respond as parents when you get news like that? We were numb. We did  the only thing we knew to do…. we cried together, and then we prayed together.

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